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Ehlers-Danlos Syndrome

naturowhat Jul 10th, 2016 139 Never
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  1. Ehlers-Danlos Syndrome
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  3. pina_logiudice
  4. Message 1 of 4 , Jul 2 5:33 AM
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  6. Hello Friends!
  7. Happy 4th of July weekend.  I am looking for some assistance with Ehlers-Dalos Syndrome.  I have never treated it before and could really use some amazing resources, information, pearls, words of wisdom.  
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  10. Even if there is any ND that you know out there that has a large knowledge base on the subject or experience, I am happy to refer. The family is here in NY, but they are more than happy to do phone/skype visit.
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  12. Thanks for the help!
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  14. Pina LoGiudice, ND, LAc.
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  18. Anne Van Couvering
  19. Message 2 of 4 , Jul 2 6:54 AM
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  21. I have been working with a patient who is seeing some progress, but would love to tap in to a doc with more knowledge.
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  23. So far, bone broth, cell salts, proteoglycans (aloe, Lions Mane mushrooms) and hormone balancing have been somewhat helpful.  Check for SIBO.  
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  25. A curious note: a colleague in transgender medicine is noticing a larger percentage of her trans patients have ED
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  27. That's all I know besides what's in the literature (supremely unhelpful literature, IMHO)
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  29. Please keeps me in the loop if you do find someone who knows more!
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  31. Anne
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  33. Anne Van Couvering, ND, LMT, CNS
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  38. Rand
  39. Message 3 of 4 , Jul 3 2:44 AM
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  41. Excellent article
  42. Suggests very large co q10 doses among others, hopes this helps. BTW, excellent blog for fibro and CFS.
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  44. http://www.healthrising.org/blog/2016/07/01/chronic-fatigue-fibromyalgia-ehlers-danlos-syndrome-diagnosis/
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  46. Phillip Cooper ND retired
  47. Eugene, Oregon
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  52. Amy Rothenberg
  53. Message 4 of 4 , Jul 4 4:12 AM
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  56. Paul Herscu, ND, MPH has seen a number of Ehlers Danlos patients over the years  & would be happy to work with this person. Our office contact info is below.
  57. xoox AMY
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  59. Dr. Amy Rothenberg
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