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- Ehlers-Danlos Syndrome
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- pina_logiudice
- Message 1 of 4 , Jul 2 5:33 AM
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- Hello Friends!
- Happy 4th of July weekend. I am looking for some assistance with Ehlers-Dalos Syndrome. I have never treated it before and could really use some amazing resources, information, pearls, words of wisdom.
- Even if there is any ND that you know out there that has a large knowledge base on the subject or experience, I am happy to refer. The family is here in NY, but they are more than happy to do phone/skype visit.
- Thanks for the help!
- Pina LoGiudice, ND, LAc.
- Anne Van Couvering
- Message 2 of 4 , Jul 2 6:54 AM
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- I have been working with a patient who is seeing some progress, but would love to tap in to a doc with more knowledge.
- So far, bone broth, cell salts, proteoglycans (aloe, Lions Mane mushrooms) and hormone balancing have been somewhat helpful. Check for SIBO.
- A curious note: a colleague in transgender medicine is noticing a larger percentage of her trans patients have ED
- That's all I know besides what's in the literature (supremely unhelpful literature, IMHO)
- Please keeps me in the loop if you do find someone who knows more!
- Anne
- Anne Van Couvering, ND, LMT, CNS
- Rand
- Message 3 of 4 , Jul 3 2:44 AM
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- Excellent article
- Suggests very large co q10 doses among others, hopes this helps. BTW, excellent blog for fibro and CFS.
- http://www.healthrising.org/blog/2016/07/01/chronic-fatigue-fibromyalgia-ehlers-danlos-syndrome-diagnosis/
- Phillip Cooper ND retired
- Eugene, Oregon
- Amy Rothenberg
- Message 4 of 4 , Jul 4 4:12 AM
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- Paul Herscu, ND, MPH has seen a number of Ehlers Danlos patients over the years & would be happy to work with this person. Our office contact info is below.
- xoox AMY
- Dr. Amy Rothenberg
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